Please share a bit about being Harper’s mother including your experience caring for her.
I continued working in Corporate America although it was difficult. After Harper’s surgery I was set to go back to work, but after much contemplation and I came to the realization that I wasn’t a priority for the company. Caring for Harper and my family was my priority, so I gave my two weeks’ notice. I was talked into staying an additional two months but finally left my job.
Saying goodbye to Corporate America was a blessing in disguise. Harper's health started to decline again. For the next four years Harper was in and out of the hospital. Then finally, after numerous misdiagnosis, mounting medical debt, and too many stays in the hospitals to count, the doctors finally had answers for us. The University of Iowa Children's Hospital diagnosed Harper with FPIES (Food Protein Induced Entercolitis Syndrome) and PFAPA (Periodic Fever Syndrome). Truth be told, if I would have stayed in a corporate setting, I would have lost my job because I would have had to miss so much work to care for Harper.
I started a home-based business to provide income for our family. I needed something that I could work from anywhere. It has taken hard work and dedication however becoming an entrepreneur was my saving grace.
I found a small local private school that was willing to work with us so Harper could attend school once she was strong enough. The first two years of school, I home schooled Harper using the same curriculum as her private school. This January (2019) Harper began attending school full-time for the first time. She is thriving now in school! Our family has a better understanding of how to care for her daily.
How did you balance your professional career with caring for your daughters?