Caregiver Support

Comprehensive Resources & Guides

health care workers

Resources

The following is a list of comprehensive resource guides that you may find useful as you care for your loved one or client. Please feel free to access the suggested resources and share them with your family and friends. You are invited to revisit this page as new resources are added frequently. Do you have a resource that you think should be included?

Understanding Grief

As you work through the heartache and uncertainties of your loss and sorrow, Right at Home can assist you with helpful grief resources. Working with grief support expert Dr. Eboni Green, Right at Home has created the booklet, Understanding Grief: A Guide for Grieving Caregivers. This insightful guide offers a number of ways to work through your grief.

The National Elder Law Foundation

The National Elder Law Foundation (NELF) is the only national organization certifying practitioners of elder and special needs law. NELF's Certified Elder Law Attorney designation is itself certified by the American Bar Association. There are nearly 500 CELAs across the country, and our numbers are growing steadily. 

Understand how Social Security Disability Works

Social Security disability benefits can provide for your family when an injury, illness, or disability prevents you from working and earning an income. Applying for these benefits is often seen as a cumbersome process, however, requiring several steps, a slew of complicated paperwork, and even in-person hearings.

Social Security Disability Benefit Calculator

Since so many factors play a role in the total amount of your SSDI/SSI benefits, predicting the exact dollar amount of your benefits is no small feat. On the other hand, it is fairly simple to come up with an estimate based on your age, the amount you have paid into social security, and other factors.    By using the calculator below, you'll get an estimate of your monthly and annual Social Security disability or SSI benefits.

Mediation

Having a mediator assist the family to hold these difficult conversations in a more productive and less contentious way can be an effective approach to improving your ability to collaborate with siblings, while also putting the needs of your parents first. A proactive, mediated approach to communication may also decrease the distress you experience and improve your psychological well-being.

Creating the Caregiver Journey Map

Elizabeth Dole Foundation, Philips, and the Department of Veterans Affairs have partnered to document the journey of military and veteran caregivers.

By mapping out key points where the right people, organizations, and service providers can step in and support caregivers as they adapt to their new way of life, we'll help achieve better outcomes for our veterans and our hidden heroes.

Access the comprehensive guide of state Medicaid programs

(elder care, housing options, and long term care with individual eligibility requirements) Senior Planning provides a broad state guide for Medicaid long term care programs nationwide. This resource is free and is compiled by Senior Planning employees. Please use the guide and the supplemental resources provided as an assistive tool to determine the kinds of programs and care that might be available to you. Medicaid programs are very detailed and as the scope of this tool is not all encompassing, we recommend that anyone applying seeks help from local experts before taking action based on the information we provide.

Health Insights and Hospital Compare VA

Quality outcomes and indicators include areas of falls and hospital re-admission rates which are generally publicly reported. In particular you might take a special interest in whether your hospital of choice is above or below the local and national rates for infections. Two excellent resources for researching hospital quality indicators are Health Insights for public hospitals or Hospital Compare VA to compare quality indicators if you are accessing healthcare as a Veteran or active duty member of the military.

Cost of Care Calculator by City/State

For 15 years, Genworth has developed the Cost of Care Survey to help families understand the costs of varying types of care across the U.S. Since 2004, the Cost of Care survey has become the foundation for long term care planning. The 2018 survey, conducted by Carescout®, covering 440 regions is based on data collected from more than 15,500 completed surveys. Get started today. Calculate the Cost of Care in your area.

Helping Financial Caregivers in Every State

If you are managing the finances for your elderly or disabled loved one, you may find the Helping Financial Caregivers in Every State guides helpful. Each of the four guides focuses on a different financial role, including agents under a power of attorney, court-appointed guardians, trustees, and government fiduciaries (Social Security representative payees and VA fiduciaries).

RightConversations

RightConversations is a practical approach for effective communication between you and your loved ones. The tools included in our guides offer the opportunity to build a strong foundation to reduce caregiver distress while helping loved ones remain in the comfort of their homes.

Do you know enough about end of life care?

Most people nearing the end of life are not physically, mentally, or cognitively able to make their own decisions about treatment. As a result, advance care planning is essential to ensure that people receive care that reflects their values, goals, and informed preferences.

Five Wishes: Your Plan for Care at the End of Life

Five Wishes, America’s most popular living will, is changing the way people talk about, and plan for care at the end of life. More than 18 million copies of Five Wishes are in circulation across the nation, distributed by more than 35,000 organizations. This document meets the legal requirements in 42 states including New Jersey and is useful in all 50 (Source: Aging with Dignity).

A Senior’s Guide to Using a Personal Loan to Pay for Long-term Care

Transitioning to a long term care lifestyle can be challenging for both peace of mind and budget. We know giving up one’s autonomy is discouraging, so we created a guide to empower both seniors and individuals living with disabilities to prepare their finances and take control of their futures.