Caregiver Support

Comprehensive Resources & Guides

health care workers

Resources

The following is a list of comprehensive resource guides that you may find useful as you care for your loved one or client. Please feel free to access the suggested resources and share them with your family and friends. You are invited to revisit this page as new resources are added frequently. Do you have a resource that you think should be included?

Understanding Grief

As you work through the heartache and uncertainties of your loss and sorrow, Right at Home can assist you with helpful grief resources. Working with grief support expert Dr. Eboni Green, Right at Home has created the booklet, Understanding Grief: A Guide for Grieving Caregivers. This insightful guide offers a number of ways to work through your grief.

The National Elder Law Foundation

The National Elder Law Foundation (NELF) is the only national organization certifying practitioners of elder and special needs law. NELF's Certified Elder Law Attorney designation is itself certified by the American Bar Association. There are nearly 500 CELAs across the country, and our numbers are growing steadily. 

Understand how Social Security Disability Works

Social Security disability benefits can provide for your family when an injury, illness, or disability prevents you from working and earning an income. Applying for these benefits is often seen as a cumbersome process, however, requiring several steps, a slew of complicated paperwork, and even in-person hearings.

Social Security Disability Benefit Calculator

Since so many factors play a role in the total amount of your SSDI/SSI benefits, predicting the exact dollar amount of your benefits is no small feat. On the other hand, it is fairly simple to come up with an estimate based on your age, the amount you have paid into social security, and other factors.    By using the calculator below, you'll get an estimate of your monthly and annual Social Security disability or SSI benefits.

Mediation

Having a mediator assist the family to hold these difficult conversations in a more productive and less contentious way can be an effective approach to improving your ability to collaborate with siblings, while also putting the needs of your parents first. A proactive, mediated approach to communication may also decrease the distress you experience and improve your psychological well-being.

Creating the Caregiver Journey Map

Elizabeth Dole Foundation, Philips, and the Department of Veterans Affairs have partnered to document the journey of military and veteran caregivers.

By mapping out key points where the right people, organizations, and service providers can step in and support caregivers as they adapt to their new way of life, we'll help achieve better outcomes for our veterans and our hidden heroes.

How to Prepare your Home When Diagnosed with Parkinson’s Disease

The guide was created to support readers wanting to create a safer home environment to ensure those living with Parkinson’s disease maintain their independence and improve their quality of life. This guide also includes a list of home renovations to consider and industry expert advice on how to finance home modifications.

12 Ways to Advocate for Yourself as a Cancer Patient

Advocacy can come in many different forms throughout a health journey from switching doctors to finding a local support group. Whatever it is, it’s important to feel empowered as a patient when making decisions, and this guide details a number of ways to achieve that state of empowerment. Also included are some helpful resources to keep track of your doctor’s visits and to organize caregiving tasks.

The Ultimate Traveler Guide for Special Travelers

Limited mobility should not have to keep you from the extraordinary wonders of the world. In fact, most national parks and other signature tourist destinations in the United States are guided to abide by limited mobility standards set in place by the Americans with Disabilities Act. This includes additional access points such as easier parking, navigation routes, spectator seating areas, and even potentially discounted prices. The following informative guide has the details you need for setting up a well-rounded trip that is both adventurous and safe.

Ultimate senior travel guide

Who says being a senior means you can’t still travel like you’re young? If you’re older and looking to make the most out of your travels, there are plenty of ways to have an adventure – in comfort and style – without breaking the bank!

No matter your preferences, here are a few senior-friendly vacations that you might enjoy – and tips to help keep your costs under control!

Home Modifications when Moving in an Elderly Parent

Not everyone has the space, time and resources required to house and care for elderly family members. If people in your family are going to work or interacting with others socially, for example, home life might be less safe than a nursing home with strict protocols. But the LA Times reports some public health figures have come forward urging families that can do so to remove older parents and grandparents from residential facilities. If this is the route you choose, you’ll need to make some adjustments to your home to ensure that it is safe and comfortable for your loved one.

What Is Medicare?

Medicare is the federal government’s health insurance program that primarily covers people 65 and older and certain younger people with disabilities or kidney failure. Original Medicare does not cover all medical costs. Medicare Advantage plans stand in the place of Original Medicare or you may opt to stay with Original Medicare and purchase a Medicare supplement policy.

This resource highlights coverage, costs, eligibility and enrollment information, along with answers to some frequently asked questions.

Access the comprehensive guide of state Medicaid programs

(elder care, housing options, and long term care with individual eligibility requirements) Senior Planning provides a broad state guide for Medicaid long term care programs nationwide. This resource is free and is compiled by Senior Planning employees. Please use the guide and the supplemental resources provided as an assistive tool to determine the kinds of programs and care that might be available to you. Medicaid programs are very detailed and as the scope of this tool is not all encompassing, we recommend that anyone applying seeks help from local experts before taking action based on the information we provide.

Health Insights and Hospital Compare VA

Quality outcomes and indicators include areas of falls and hospital re-admission rates which are generally publicly reported. In particular you might take a special interest in whether your hospital of choice is above or below the local and national rates for infections. Two excellent resources for researching hospital quality indicators are Health Insights for public hospitals or Hospital Compare VA to compare quality indicators if you are accessing healthcare as a Veteran or active duty member of the military.

Cost of Care Calculator by City/State

For 15 years, Genworth has developed the Cost of Care Survey to help families understand the costs of varying types of care across the U.S. Since 2004, the Cost of Care survey has become the foundation for long term care planning. The 2018 survey, conducted by Carescout®, covering 440 regions is based on data collected from more than 15,500 completed surveys. Get started today. Calculate the Cost of Care in your area.

Helping Financial Caregivers in Every State

If you are managing the finances for your elderly or disabled loved one, you may find the Helping Financial Caregivers in Every State guides helpful. Each of the four guides focuses on a different financial role, including agents under a power of attorney, court-appointed guardians, trustees, and government fiduciaries (Social Security representative payees and VA fiduciaries).

RightConversations

RightConversations is a practical approach for effective communication between you and your loved ones. The tools included in our guides offer the opportunity to build a strong foundation to reduce caregiver distress while helping loved ones remain in the comfort of their homes.

Do you know enough about end of life care?

Most people nearing the end of life are not physically, mentally, or cognitively able to make their own decisions about treatment. As a result, advance care planning is essential to ensure that people receive care that reflects their values, goals, and informed preferences.

Five Wishes: Your Plan for Care at the End of Life

Five Wishes, America’s most popular living will, is changing the way people talk about, and plan for care at the end of life. More than 18 million copies of Five Wishes are in circulation across the nation, distributed by more than 35,000 organizations. This document meets the legal requirements in 42 states including New Jersey and is useful in all 50 (Source: Aging with Dignity).

Internet Basics for Sniors

With scams targeting seniors on the rise, the need for updated and accurate resources is more important than ever. With that in mind, we've created an all-inclusive guide with ways to help seniors stay safe while using the internet, including:

  • A breakdown of common online scams targeting the elderly
  • Additional tools for seniors to get the most use from their internet
  • Tips and resources to avoid and report online scams

A Senior’s Guide to Using a Personal Loan to Pay for Long-term Care

Transitioning to a long term care lifestyle can be challenging for both peace of mind and budget. We know giving up one’s autonomy is discouraging, so we created a guide to empower both seniors and individuals living with disabilities to prepare their finances and take control of their futures.

COVID-19 Resources for Older Adults & Caregivers